Children with SCI need specialized care throughout their childhood and teenage years. However, because spinal cord injuries are relatively rare, few pediatrician have experience in the care that children need.
Spinal Cord Injury in the Child and Young Adult covers the vast territory of pediatric SCI all in one place. According to Dr. Vogel, chief of pediatrics and assistant chief of staff at Shriners Hospitals for Children — Chicago, and a professor in the department of pediatrics at Rush Medical College, children with pediatric-onset SCI face health system gaps, especially in the transition from pediatric to adult care and the conversion from parent-controlled health care to self-management.
The book is intended for clinicians of all disciplines who may only occasionally care for youth with SCI. But it’s also helpful to those who specialize in SCI as well as clinical and basic researchers in the SCI field. Topics include; new developments in pediatric SCI research, current standards for optimal care, areas lacking scientific evidence, and recommendations for clinical practice and future research.
We interviewed Dr. Vogel about his book:
Q: What are some of the new developments in pediatric SCI research?
Dr. Vogel: We are studying the psychosocial development of kids with SCI throughout their lifespan including their outcomes as adults, plus looking at their caregivers and the mutual impact that caregivers and kids with SCI have on one another.
We are [also] working on ways to evaluate outcomes (such as activity, participation, neurological and functional status) that are appropriate for children of different ages, and that hopefully can be used to track their progress throughout their lifespan.
In respect to mobility, both power and manual wheelchairs appropriate for children as young as one year are becoming available. It is critical we assure that kids of all ages have the means to be mobile in their community so that they may fully participate in society.
Q: What are some of the more difficult, or unknown factors children with SCI face as they transition to adulthood? Continue reading